Tuesday, October 20, 2009
Tuesday, September 29, 2009
Tuesday, September 15, 2009
Monday, September 7, 2009
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I've also added a donation button but please do not feel obligated to donate money. It is my pleasure to share Aydan's journey of recovery with the world. I realize it may sound premature to some to call this "Aydan's recovery" when we have so far to go but we certainly have a better chance of making it happen if we all believe that it's possible.
If you do chose to give, all money will go towards Aydan's recovery, particularly his bio-medical treatment. For those of you with autistic children, there's no need to elaborate; however, for those of you who may not know, autistic children often suffer from great medical problems that result in the autistic like behaviors present to the world. The underlined issues are many and usually need to be treated with costly diet interventions, medications and supplements (that's the short list). Most of these treatments are not covered by insurance. Aydan's supplementation and medication not covered by insurance are approximately $300 a month. That doesn't include the added expense of having him on the Specific Carbohydrate Diet and other interventions not paid for by insurance, regional center or school district. It's a whole big thing and with the budget cuts in California... That's a rant for another post.
First of all, what is Biofilm? Since I'm certainly no expert let me tell you Dr. Usman's hypothesis: "Patients with autism, who have toxic metal burdens and toxic chemical burdens are likely to grow resistant organisms in their GI tract. This resistance to treatment is perpetuated by pathogenic biofilms will help to eradicate dysbiotic flora and improve the symptoms we call autism".
Sounds good right? So how do we treat it? Since we are about to embark on this journey ourselves I'll let you know how it goes but in the meantime I've provided the steps for you as described by Dr. Usman in case you'd like to give it a go; (These steps listed below are directly taken from the Dr. Usman's syllbaus provided to us at the conference).
"Step 1: Lysis/Detachment
-Enzyme (polysaccharidase, disaccharidase) (Kirkman's lab has a new one on the market that is supposed to target biofilm specifically, we haven't tried it yet).
~Staph use fibrinolytic like lumbrokinase, serratiopeptidase, or nattokinase
~Pseudomonas or thick mucus prodcution use serratiopeptidase
~May use pineappe or papaya for senstive patient
-Disodium EDTA (oral only)
-Lactoferrin (especially for Psuedomonas)
~Works best on an empty stomach
~Start one supplement at a time, go slow
~Do not give Enzymes on an empty stomach to patients with severe GI issues
~Do not give Lactoferrin to patients with dairy allergy
~Avoid giving Iron, Calcium or Magnesium with supplements above
~Careful with sensitive patients or weak patients
Step 2: Killing
-Consider Natural Antimicrobials first
-Do not start with Pharmaceuticals
-Vary agents depending on microbiology and mycology testing
-Bacterial Cultures tend to show Gram positive overgrowth or Gram negative
-Dysbiosis may seem to worsen initially
-Watch for die off, treat accordingly
-Consider the use of antiobiotics or antifungals meds if organisms remain persistent
Step 3: Clean up
-Activated Charcoal if needed
-Alginates, Brown Algae
-Modified Citrus Pectin
~Very important step
~Help prevent symptoms of die off
Step 4: Rebuilding/Nourishing the Gut Lining
-Healing, nutritious, non-toxic foods
Wednesday, September 2, 2009
When Aydan was born I was very nervous about how this would go over with his then 2 year old brother. I had just barely stopped nursing big brother, Avery and I was wrapped with guilt about it. Imagine your mother stops nursing you and two months later a new baby who is getting your mother's milk. When Avery came to the hospital to visit me and the new baby he was excited. I could hear him running down the hallway saying, "Mommy.." He entered the room, big smile with markers and paper in hand. At two years old Avery was an amazing artist. He especially loved to draw the bad guy from the "The Incredibles" and he always had to carry marker and paper in case inspiration struck. When he saw me and the baby in the hospital bed he smiled. He said "baby". Everyone was passing the baby around from my husband to my mom and his mom and sister and so on... Avery was then able to climb up in my bed with me and have a little drawing session. We cuddled and drew. After a short while the baby began to cry and my husband handed him to me to nurse. I began nursing him and looked to see Avery's face. He was pissed. He took my mom's hand and indicated he wanted to go. He didn't even say good bye. A little while later my emotional wreck of self began to cry. The nurse came into the room and asked what was wrong. I told her about what had happened with Avery and I'll never forget her response, "it's hard to be all things to all people".
At home Aydan was a difficult baby. Like many babies who will later become autistic, he developed quickly but seemed clingy and cried whenever I left his side. I remember this one morning I looked over at Aydan to find him smiling and awake. He was so precious that I lifted him into my arms and in a motherly nurturing way I showered him with kisses and words of love. I felt someone's presence and looked over to find Avery standing in the doorway watching me as if I had cheated on him. I went to say something to him but he ran away. I tried to put Aydan down so I could go after Avery but he cried and I felt trapped.
The next two years would go by and we all began to adjust but as Aydan's behavior became odd and he did not show interest in his big brother like other younger siblings often do, we set in motion on the journey that is autism. Once again I worried about Avery. How would Avery a then 4 year old boy understand? Would I ever be able to give him the attention he deserved? Shortly after Aydan's diagnosis I read books about siblings of the disabled. These are great books if you're trying to increase your mommy guilt but mine was quite high enough. I lugged Avery around from appointment to appointment where he was told "only your brother can play in the sensory room" or "these toys are for your brother". Day in and day out the therapist came to the house with a suitcase full of toys...for Aydan. Eventually we could all see the toll this had on Avery and the therapist started bringing toys just for him. I also began to spend afternoons in Avery's room playing castle or whatever game he wanted and allowed the therapist to do all the work. Further relief came when my husband started to incorporate Daddy and me Wednesdays. Every Wednesday after school he and Avery would go to Chuck e Cheese or Round Table to play video games and get their gluten on. The years went by and we got through it.
Fast forward to today and Avery is a bright, sweet and sometimes grumpy boy. The other day he decided to take on the roll as Aydan's therapist. He had a three point plan. First get Aydan off his toes. He did. Then get Aydan to talk, He managed to get him to say "hi". Then get him stop stimming. This was tougher so I suggested he stim with him. Avery did a marvelous Floortime therapy session and after 15 minutes or so said to me "it worked and it was easy". You see when Avery stimmed with Aydan, Aydan smiled and this opened the door for a little light wrestling, tickling and fun.
I know I can't always be Supermom. In fact I despise the individual who ever came up with the term. I can be proud of the fact that despite my short comings, I've managed to make some pretty great kids.
Monday, August 31, 2009
Friday, August 28, 2009
P.S. Know what's in your vaccines before you take them. Check out this PDF with a list of the ingredients inside the Flu Vaccine and ask yourself if you'd rather have this in your body or the flu?
Wednesday, August 26, 2009
Sunday, August 23, 2009
Our first son is Avery. He was a small 6 lb. 11 oz. baby. Adorable, sweet and always sick. After numerous trips to doctor and incorrect diagnosis, after incorrect diagnosis he ended up in the emergency room. That emergency room visit turned into 2 weeks in the hospital and a surgery resulting from a ruptured gallbladder at age 7 months. After countless blood draws daily in the hospital, I decided to hold off on vaccines. I waited until he was fully recovered at around 18 months. When I finally allowed the doctor to vaccinate, I said “no MMR, I heard it causes autism.” The doctor swore up and down that this was unfounded and that the doctors who made this claim were sued and lost there licenses. Trusting our doctor, I allowed the vaccine but said just one since he was so traumatized in the hospital.
Fast forward less than a year later, we had Aydan. Aydan was a big 9 lb., 9oz. baby. Healthy and strong, he crawled at 4 months, walked at 10 and spoke single words by 12 months, even knowing the word “hands” when he clasped his hands together. (Today at age 4 we are still struggling to teach him his body parts). Remembering the words of my doctor; I did not hesitate to vaccinate Aydan. He received all of his shots as scheduled but something happened to our big, healthy boy. In an all too familiar story he began to regress following a sickness and a series of vaccines. His language became sparse and erratic; he walked primarily on his toes and did not have interest in other children, even his brother. One day I took him to our Mommy and me gymnastic class and the instructor asked why he wasn’t talking yet (at age 2), “is it autism?” she asked. I immediately responded, “no”…”he’s not been tested.” I hated her for saying that and I couldn’t keep it out of my head. I became an expert on the subject of Google and looked for any explanation that wasn’t “autism”. I couldn’t find it. Later I heard the “a” word again and this time it was from a friend. I knew she labored to tell me but in the end she did what she thought was best and so did I. A few days later he was diagnosed. The doctor was great, telling me that nowadays kids recover all time and not to worry. What she didn’t tell me was that the reason kids recover is because their families work their as*** off and spend countless hours and funds on resources.
I’ll never know if holding off on vaccinating my first son spared him for autism or if not holding off on my second caused his autism. I can’t really dwell on what could’ve been but can only forge forward and know in my heart that one day Aydan will recover.
Since, I can’t take back what I did having my son vaccinated, I can try hard today to make his quality of life worth it and find meaning in all that we go through.